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Alice Bast
Twenty-two doctors could not diagnose Alice Bast with Celiac Disease which is an intolerance for gluten. Now she’s on a mission after having a stillbirth.
Alice Bast
Website(s):
http://www.celiaccentral.org
Alice: If I can save one other woman from going through what I went through starting this Foundation and working day and night to raise awareness for celiac disease it is worth it.
Alice Bast is the founder of the National Foundation for Celiac Awareness. This mantle she carries to lead the world in awareness of common disease that is believed to be uncommon came at a great cost.
Alice: I was down to 100 pounds everyone thought I had anorexia. My hair was falling out, my teeth were breaking, I was just sick all the time.
Linda: And twenty-two doctors couldn’t figure it out?
Alice: Twenty-two doctors could not figure out that I had celiac disease. They thought it was a rare disease and yet 3 million people are walking around this country suffering needlessly because they have undiagnosed celiac disease.
Walking to gluten free area
Alice: Celiac can happen later in life. It can happen at any age.
And what happens is your body cannot tolerate a protein called gluten. Some symptoms mimic other digestive problems cause stunted growth in children and depression in teens. When gluten is removed from the diet, recovery is astounding.
Alice: This only took about a week or two and she was much better. Wheat, rye and barley are poison to somebody with Celiac disease.
Linda: And wheat, rye, and barley are in things we don't even think of.
Alice: They could be in the lipstick you are wearing right now.
Alice’s Foundation has created a multimedia-training program so even kids know what foods to avoid.
Kids and Moms Playing Soccer
Linda: Whose going to win? The moms!
Alice: You eat great food; whole food and then you go on to be healthy.
Alice to Daniel: Can you have these Twizzlers?
A Mom: He would come home from preschool and say, “I'm tired mommy I want to take a nap” and as a mother you know no 3-year-old wants to take his nap.
Linda to Daniel: Do you want to make some gluten free pizza?
Mom: It's been two years since he's been on gluten free diet and he's a different kid.
Alice: We’ve got gluten free pizza. We made our own pizza.
Alice: My daughter wrote a paper in school saying not only did celiac disease help my mom get healthy, but also it helped out entire family eat better.
Bea Bea: If you have 132 friends at least one is a celiac that means a lot of people in my school have celiac disease yeah
Linda: You had the most tragic thing happen to you because of your disease.
Alice: I lost a daughter. Her name was Emily. I had gone to the doctor and I said there is something wrong with me I don't understand it I have this awful diarrhea and he said “Oh don’t worry about it just take Imodium you'll be fine.” What happened was the baby stopped moving altogether and two weeks before delivery she was dead and I had to deliver a full term stillborn child.
Still undiagnosed, Alice’s daughter Bea Bea nearly suffered the same fate but was delivered by cesarean at 33 weeks.
Alice: I was so so happy to have this baby she was alive. She was alive.
Yet Alice still grew sicker until a friend mentioned it might be a wheat allergy and it was. From that point, Alice threw herself into research and even received a grant from the National Health Institute to link celiac disease with infertility and miscarriage. Then she created a foundation to educate people, especially physicians about the disease.
Linda: There is a simple test for this?
Alice: A blood test is the first line of action for celiac disease it's an antibody test.
Linda: When you think about Emily what do you think about?
Alice: I will never get over losing Emily and she's in my heart. Maybe there's a reason for everything that's a really tough lesson to learn but I'm a very positive person and very optimistic. Instead of thinking to the past and what happened and what happened that is negative in my life trying to make a difference so other people won't have to suffer what I have been through.
Alice: You're a big big help. You’re my girl.
Bea Bea: Your welcome mamma.
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